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Supporters of Endo Survivors
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25th-Mar-2007 05:45 pm - goodsearch.com supports endo!

On Monday, March 26, the Endometriosis Association will be the featured “Charity of the Day” on the search engine, GoodSearch.com. Every time you do an Internet search using their site (www.goodsearch.com) on that day, the Association receives a donation. The site is powered by Yahoo!, so you'll get the same quality search results that you're used to. I hope you'll give it a try and support a cause that is very close to my heart. The more people who use this site, the more money will go to the Endometriosis Association. So please spread the word to your friends and family!

But why wait until then? GoodSearch.com will donate to the Endometriosis Association all year long – sign up now and get the Internet working for endo now!

19th-Dec-2006 07:24 pm(no subject)
I no longer belong here, so if someone else wants to be mod please let me know.
19th-Aug-2006 03:28 pm(no subject)
I hesitate to post here, since I know that my girlfriend haunts pretty much every endo-related site known to humankind (and probably a couple more). ;) But I'm thinking that this community will die without the occasional post, and no one really wants to be one of the first. So here I am, sucking it up and posting.

I'm basically in the same position I was in my first post... completely in love with a woman who has endo. She's going through a ridiculously difficult time right now, dealing with so many huge changes in her life and trying to curb her endo at the same time... it's draining and stressful and I really wish I could do more to help her.

But we can't.

All we can do for our partners is support them and stay with them through everything. While that doesn't seem like a whole lot of active assistance, I think they appreciate it so much more than we'll ever realize. And to be honest, it's hard to deal with that kind of debilitating, seemingly untouchable sort of pain in those that we love. We can bandage cuts, make chicken soup for colds, even carry them when they break a leg... but what can we do about endo? It's enough to make you tear your hair out, because you just want do DO SOMETHING. Dealing with her pain is difficult, I'll admit... but I put it in perspective with what she's dealing with, and it pales in comparison.

Now, keep in mind that I'm generally a pretty pessimistic person. Well, I call it being a realist, but no one else seems to agree with me... Anyways. In terms of this situation, I need to have hope to hold on to. While I have no science or anything else to back me up, I know in my heart that things will get better. More people are learning about endo every day, and there is some (albeit limited) research being done. I can't bear the idea that she might be in so much pain for the rest of her life. I can't.

And holy crap I've rambled on for no apparent reason. Ok. So. I've posted. Please don't let this go to waste. Post. Conversate. Argue. Support. Whatever you want to do. Just get it out there. :)
Ok, people... I thought this was a good idea, but I'm getting a little depressed because the membership numbers are so low...

For those of you who are ghosting... Join! Post! You know you want to. Everyone's doing it! And it's healthier than your options...

For those of you who are already members, get the word out! Pleeeease. :)
13th-Apr-2006 09:43 am(no subject)
Sometimes I just don't know what to do when she's in so much pain... She's SO strong, and I know that she'll make it through anything -- I just wish she didn't have to. I start to feel helpless because there's really nothing that I can do for her, but then I think I'm being selfish when I feel that way because it's really not about ME. I dunno.

I just remind her constantly how much I love her... how strong she is... and how I'm always going to be by her side, and that we'll get through everything together.

I think the distance is a major factor (HA. Einstein. 3000 miles might be a factor? Nooooo kidding.). She says my outlook might change when I'm there 24/7 and dealing with her pain all the time; she thinks it might be too much for me... But I think that it'll be a good change, in that I'll actually be able to be there for her. I can hold her hand, talk to her, get her a heating pad, take care of her...

I just love her so much... I want her to be able to truly believe that I will always be there, but there's nothing I can do to convince her other than to just do it. So I will.
5th-Apr-2006 08:48 pm - first post
i am completely in love with someone with endo. she had surgery last november to have an ovary and a tube removed. she understandably took it very hard. i tried to do what i thought was best, which was to stay strong for her and not lose control. and she saw it more as my not understanding or appreciating what she was going through. she completely changed her diet after she was diagnosed--exclusively organic, and almost exclusively vegetarian. it was tough for a while. such a drastic change so suddenly. i wasn't as supportive as i should have been.

anyway, we're going through a rough time right now, not necessarily because of the endo, but that of course is part of everything, and will be forever. i just love her so much and wish i could make all of her problems go away. and i can't. so i'll stick around here and try to get some advice from some other folks who are also trying to be supportive. i hope it helps.
27th-Mar-2006 09:07 pm - Oh, and by the way...
This is for support and ranting and general discussion... not for abuse. You want to get abusive, go somewhere else, because it will NOT be tolerated here. I will happily delete entries and or comments if I feel, or if there is a general consensus, that they are abusive and counter-productive.
27th-Mar-2006 08:46 pm - I guess I have to break the ice, eh?
The "eh" is in courtesy to my Canadian girlfriend ;)... who is an endo survivor. She is the strongest person I know, but endo is a relentless adversary. I'm there for her as much as I can, and hopefully as much as she needs. While I love her and taking care of her is... natural... I know that it can be difficult at times. This is a place for all of us who support those with endo to find support for ourselves... we're all in this together, and they need us.
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